“When you have a right to die, you have a right to try”

My name is Vincent Beukers (34) and doctors have given up on me.  Fortunately, my family and friends haven’t. I’m married to Sabine (29) and together we have three children: Kess, Juul and Soof in the age of four, three and one. Recently I’m diagnosed with Amyotrophic Lateral Sclerosis (ALS).

ALS is one of the most severe and disabling conditions of the nervous system and has a life-expectancy of 3-5 years after the first symptoms. ‘Directly after the unexpected diagnosis the doctors told us there was nothing they could do and wished us strength. And then… you’re going home. A rollercoaster awaited us and the only thing we could do is get in’.

But what if?

What if there is a treatment for ALS which lengthens the life expectancy and severely reduces the symptoms? What if this means you do get to see your children grow up? Would you do it?

There is a treatment. But.

This requires money. A lot of money. Money that we don’t have. Of which I hoped I would never have to ask for. With your help I will get a chance. A chance for a longer life.